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3児の母(6歳男児･4歳女児･2歳児男児) 娘がKCNT1遺伝子異常からの難治性てんかんで医療的ケア児でした。2021年8月20日他界しました。ネガティブも吐き出します。 受注でテディベア作ってます→ @fullcamodbear
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